Data Access Policy

Access to the anonymised data gathered for the NSW Child Development Study is restricted to a small group of researchers approved by the Human Research Ethics Committee/s.  These researchers are drawn from the NSW Child Development Study Scientific Committee.

Data storage and use is restricted by Commonwealth and State privacy and personal information laws, professional ethical requirements, and by strict internal data access protocols.

Any other researchers or study partners/school sectors wishing to access the data have to fulfil strict requirements, and information is only ever available for legitimate research in an anonymous format that prevents identification of particular schools or individuals.

Access to record linkage data used in the study is covered by the relevant State and Commonwealth laws, and by the procedures of the different data custodians (for example procedures of the NSW Department of Education , or the NSW Department of Health). Scientific committee members have to apply in writing to access record linkage data that is relevant to their research. See our pages on record linkage.

For more information about data access protocols please contact the research team directly.

External collaboration

The NSW Child Development Study is conducted by a large team of University-based researchers, in close collaboration with government agencies in Australia (please see: Who We Are). With multiple waves of record linkage set to occur as the children develop, the data available for analysis is continually growing, and the number of collaborating researchers is expected to increase in the coming years. We welcome new domestic and international collaborations that expand the expertise of the research team and increase the scope of the study outcomes. Please direct initial requests for collaboration to Professor Vaughan Carr or Professor Melissa Green.

In evaluating requests for collaboration the Scientific Committee will consider whether the proposal is aligned with the study aims, the overlap with ongoing studies, logistic consequences and resource implications, in addition to the overall benefits of the proposed collaboration.